BE LOVE.BE LIGHT. BE UNITY.

belovebelightbeunityWhen we started this journey in 2011 my  son was a kid…a small child and we lived in that time trying our best as parents to get him through a new diagnosis and yet savoring and preserving the most of his innocent childhood seizing each moment that life with Epilepsy would allow! Especially at that time uncontrolled seizures! Now fast forward five years and that boy is no longer a child he is a teen and every day morphing into a young man trying to find his way and as parents our role has changed from trying to preserve his childhood to making sure he has his foundation and he is ready for the world that is ahead of him. Recently this Summer after a series of testing my son was diagnosed with a few more things other than his Epilepsy but they were caused by how long he has lived with Epilepsy and also by the time he went  without being diagnosed ; this disorder will forever affect his brain and his ability to process things throughout his day. Since this diagnosis we have had to learn as a family how to do things differently to not only help him in the present but to prepare him for his future!

His future, most parents start preparing their teens for a future with joy and they have no hesitations and no big worries, but I can’t honestly say as a parent of a teen with Epilepsy that my thoughts may be so easy going.I’m sure if you ask others they may agree When your child has seizures not only are you worrying about a time where seizures may be increased, but you are worrying about overall health and care and those who can be a good support base for your child when you are not right there! My son has many times when he not only can find dark times of sadness, where he is  trying to find his way in the day when his  thoughts are cloudy with negativity, times when he can’t remember to do simple tasks that come so naturally to many of us! Times when important memories don’t come easily and my honest worries are will there be someone kind enough to take his hand and help him through those days he can’t walk on his own! Someone who won’t prey on his weaknesses, or laugh at his vulnerability but walk by his side seeing the amazing person he is! Taking his hand and being there his support and his light in the days that are dark, his love when he is not confident in himself?

In raising my children I have been big on teaching them to BE LOVE…to BE LIGHT to everyone that comes across their paths in this world because their job is not only to remind them that they matter but also to remember You never know what battle someone may be fighting that your encounter in that moment of the day could bring them hope! They live by the no matter what your day is Always BE LOVE , ALWAYS BE LIGHT…. So my hope is that there will be many along his journey that have the same morals and values that he has and that also they live by the BE LOVE. BE LIGHT…and no matter what your day is always BE LOVE, ALWAYS BE LIGHT mentality!

In a community we are asking for a light to shine on Epilepsy and more awareness to be raised and more understanding and now all the more I understand why! We can’t afford anymore to have so many out here feeling like they are walking a journey of being misunderstood and not cared for. It is hard enough to deal with seizures when you have family helping you but when you are walking this journey by yourself it is long and dark and no one deserves to fight alone, when you have encouragement you feel you can do anything…and on days the battle gets tough you have a team cheering you on reminding you never to give up!

I implore you Epilepsy community continue to raise your voices don’t be quieted , don’t let your lights be dimmed out raise them every day and especially this month of November  as we raise awareness BE LOVE. BE LIGHT. BE UNITY! 

We Cannot hold a torch to light another’s path without

brightening our own” ~Ben Sweetland

We are One!

Un Pour Tous,  Tous Pour Un!  All for one, and one for all!

This motto is one that is associated with the Three Musketeers; in the novel these words are cleverly  used to describe the loyalty between three companions. Their dedication to each other and their cause! Words that explain the fact that no matter what came their way, they were together through thick and thin!

After our son’s diagnosis with Epilepsy those words were heard day and night as he battled to find a sense of himself, to understand the changes not only in his life, but also in his brain! While; we, as his parents wondered why him , and how we were going to get past obstacles! Words heard as his siblings rallied to help him through each day, putting their own needs aside! These words echoed as we lost friendships and relationships changed!  These words we cling to as air, for survival! “ALL FOR ONE, AND ONE FOR ALL!

There are 50+ million people worldwide; it does not matter if they are rich or poor, their nationality makes no difference. It does not ask whether they are a mother, a father, a brother, a sister, an aunt, an uncle, a cousin, a niece , a nephew, a grandmother, a grand father, a wife, a husband, a son , a daughter…a friend, a lover, a co-worker, an employee, or  a neighbor! These 50+ million have something in common they have been diagnosed with Epilepsy.

50+ million people who are searching for answers, trying to understand, fighting to survive, seeking acceptance, making adjustments, overcoming obstacles and living in the day they are given!

50+million people who individually have a strength that endures the hardest day, a will that could move the largest mountain and above all the mindset that they cannot lose and the determination to never give up or back down.

Yes it is important to have individual strength, to have strength and unity as a family core!

But the most powerful the most meaningful of these is the true understanding  in knowing there is; something so much more, than what we can see in front of us, than what we can hear, than what we can touch…  and that is  that we went from one voice  to 50+million who are all in unison saying  “All for one, and one for all!”  That We went from standing alone to being surrounded by 50+ million who all stand on one platform created out of the words  “all for one, and one for all!

That our touch reaches out with our determination  not to stop with in our own lives but when we as  individuals work tirelessly day in and day out to raise awareness, to advocate, to support, to love, to lift, to listen and to help others see that they are not alone in this journey!

It took three years for my family and I to learn these valuable lessons, and now we know that although there must be individual strength and family unity that the biggest power comes from 50+ million people who are willing to no longer be individuals or strangers but become family and  believe in those words “All For One, and One For All” and  stand united as an Epilepsy community with one voice and say;

We are one, our cause is one, and we must help each other if we are to succeed!  ~ Fredrick Douglass 1847